
Spike. Weaky, is what I am going to call him. I am tired of using "spike" as his name. We call him Weaky, so his new name here is Weaky. (previously known as Spike)
Above is the picture of him and Bagel getting Baptised. But that is not what this post is about. This post is to tell you that Weaky is going to be a bit over protected by me. Not that Bagel isn't. but there is just something small and fragile about Weaky that makes me protect him more.
Now even before Monday, I was like that with him.
So Monday... lets back the truck up to a few months ago. Weaky's ped. says that we should contact a specialist about his head. He thinks it is misshapen. I put it off, finally Spaghetti wants to call. I said go ahead. I am not excited about this but if it makes you sleep better at night go ahead.
He called, made the appointment, and we saw a bunch of people at this place called "Cranial Technologies" who make these bands for kids with flat heads. These helmet band things, are so they don't have to do surgery, it's worn like a boxer's training helmet.
So after pictures, and measuring, and looking, and more measuring, and some family history, Weaky was diagnosed with being moderate, in need for a helmet. He would have been mild and could have just let it get better. But the nice lady told us that his eyes are off center, and his ears are too. And the odds that both Spaghetti and I can't see more the a foot in front of our faces, if Weaky needed glasses, they would be crooked on his face.
I don't need my kid having amo for the bullies in school, so Spaghetti and I decided to go ahead and get this for him. We had to wait 48 hours for the insurance to call me and discuss what was covered.
This is a $3600.00 helmet, therapy, and all visits price tag. With our insurance, we have already met our deductible, so we would owe $200.00, IF and I say IF they can get it in this year. In two weeks it will change (our insurance plan is changing) it will be up to $450.00. The insurance has up to a month to get back to us.
More random details. Oh and let me tell you I am excited about this, Weaky would have to wear the helmet or http://www.cranialtech.com/index.htmlDOC, for 23 hours a day. CAN NOT get it wet, must check for sweating and irritated skin. Hoping to get this done ASAP, he would have to wear it for 3-4 months.
Plus since he favors his left side, he has torticollis and has some pulling in his shoulder, so we have to do exercises on and off through the day to get that fixed too.

Bagel was cute when we showed her what Weaky would have to wear, she wanted one too.
At first I was sad, and overly protective of Weaky on this subject. I didn't want to talk about it. So that is why my parents and Aerial found out just days before hand.
I am better about it. They say I should be prepared for staring and whispering, and looks. Well thanks to Dystonia, my parents and my sister, well we are all pro's at dealing with that.
I am hoping this time next year the DOC band is all but a memory to us. I hope it does what it needs to, and we can move on. If your interested to see what it looks like, or read up on it. Check them out here, and all over this post.
I will keep you posted on what is going on, for now we just wait for the insurance, and until then I must do exercises with my Weaky man.







3 comments:
My sister-in-laws nephew had to wear a helmet cause he was so flat on the back. Before you know it, it was done and over and he is lookin' great. They wanted a dark blue color and wanted to make it look like a Bears Helmet but when they got it in, it looked more purple.
Everything will be just fine. Your kid will be wearing a helmet and mine needs a contraption on her feet when she sleeps. (I'll email you about this later) - We can take pictures of them with the gear on and laugh about it when they are 10 : )
If you want to email someone that has gone through this, let me know. One of my good friends in Downers Grove went through this 6 years ago. Her daughter had tortollis and had to wear a helmet and do exercises, too. She is perfect now.
You will get through this. It will be hardest on you. Just remember that kids are resilient and that Weaky will never remember any of this.
Weaky is stronger than you know, mommy.
And getting stronger :)
Post a Comment